National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases. org contains information on the prevention,. Many libraries, schools, universities, and hospitals subscribe to NORD’s Rare Disease Database for unlimited access to reports on more than 1150 diseases. The Office of Rare Diseases (ORD) at the National Institutes of Health (NIH) coordinates research and information on rare diseases at the NIH and for the. Information about many types of rare diseases and disorders, including causes, symptoms, diagnosis and treatment, including orphan drugs. A rare disease (sometimes known as an orphan disease) has such a low prevalence in a population that a doctor in a busy general practice would not expect to. ORPHANET is a database dedicated to information on rare diseases and orphan drugs (available in French, English, German, Italian, Portuguese and Spanish). The Rare Disease Search Engine is specialized search engine using Google's co-op program combined with a narrowed field of search to eliminate useless. The primary NIH organization for research on Rare Diseases is the NIHThere are close to 7000 rare diseases and about 25 million people in the U. S. have. Rare diseases are now one of the priorities in the EU Public Health ProgrammeFurthermore, regarding rare diseases projects, DG SANCO prioritises. Genetic and Rare Conditions Site blue line. Refsum disease · Retinal degeneration · Retinitis pigmentosa (retinal degenerative diseases, Usher syndrome). Return to. rarediseases. info. nih. gov/asp/diseases/diseases. asp rarediseases. info. nih. gov/asp/diseases/diseases. asp. [. Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe. www. eurordis. org/. Genetic Alliance 4301 Connecticut Ave, NW Suite 404 Washington, DC 20008-2304 800-336-GENE 202-966-5557 FAX: 202-966-8553 E-Mail: info@geneticalliance. org Web: http://www. geneticalliance. org/ www. familyvillage. wisc. edu/lib_gene. htm. The number of drugs and biologics approved since the Orphan Drug Act of 1983 is having a major public health impact on treating people with rare diseases. www. fda. gov/fdac/features/2003/603_orphan. html. var _psBack = '« Prev'; var _psForward = 'Next »'; var _psQueryID = '0F14A57923EB634AB7510492DB96587A'; var _psQuerySource = '121'; var _psSiteID = ''; « Prev  1  .